That happened to be the biggest mishap we had for the rest of our stay in China. The rest of our time there went well and Arjay made it through his treatments without incident. The spinals (lumbar punctures) were a bit more difficult than the IV's. He had to stay hungry 6 hours prior, lay flat in his back for 6 hours after, and remain hungry for 4 hours after also. Because he's so young, I didn't want to take the chance of feeding him while lying down so, he stayed hungry for the full 6 hours. All in all, he tolerated it well.
We were hoping to see some really big miracles while there but reality took no time settling in the fact that this was a process. There were so many other patients there, with an array of different conditions, ranging from autism to multiple sclerosis. Arjay happened to be the youngest but there were other children as well as adults. Being in an environment where almost everyone had a condition, made me re-think the word "Normal". It seemed abnormal to not have something wrong and everyone there embraced their circumstances with an amazing arm of hope. In addition to Arjay's treatments, he also received Physical Therapy twice daily and Electric Wave Therapy/Accupuncture once daily for six days out of the week. It was intense and it made me realize how much more therapy he needed here at home.
Days turned to weeks and before we knew it, we were saying goodbye to all the wonderful people we seemed to have just met. Saying goodbye was bittersweet for several reasons.
1. Going to China seemed surreal and now we were returning to the reality of life at home.
2. We had no idea what to expect in the coming days because we hadn't seen any ground breaking improvements yet.
3. The mission was over, we had been to China, now what??!
Nevertheless, coming home to the rest of the family seemed long overdue and we couldn't wait!
Friday, August 14, 2009
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